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Disability Narratives

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Video clip: Jan has had full epileptic seizure and absence seizures at work, both bringing short term memory loss; while she can work through an absence seizure she finds it helps to make lots of notes as she goes through her day.

If I have, if I have partial or absence seizures, I tend to just work through them. And I remain at work. If I had had a full epileptic seizure in my sleep, I might well have stayed off the next day. Because you do wake up with a pretty awful headache.

I think, as I mentioned earlier, it's just the memory part of it. I would - if I ever have - Or when I do have a full seizure, I don't go in the next day because I would be not fit for purpose. But when I do go back, it's initially - it's the memory problems which are, which are challenging.

 

What would you want people to know, in case someone in their office was having a seizure or something like that?

 

I think I would want them to know that for me personally, it affects my memory.

And that's kind of, that's quite scary. So you, you could sort of come round and not immediately be able to remember things. I mean, I have sat in front of a computer screen and thought 'what's my name, what's my password - I don't have a clue'. But if I can kind of sit there quietly for a little while, it kind of filters, it filters back. I think that's why I said about coping mechanisms. I make notes about everything. So especially new procedures within the accounts system. I suppose everybody does, but I think it's more pertinent for me to have notes. Because if it's just gone, at least I can read my notes and it will trigger something, and, and the memory will come back.

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